A few years ago I was told I was mild to moderately deaf in my left ear. I had my septum fixed and learned shortly after from the ENT.
We were getting ready to PCS. So getting further research as to what was going on had to wait.
It took a bit of time to get the correct referrals. But finally I was able to see an ENT here.
After some tests I was finally give a diagnosis. A reason to why I’m losing my hearing.
I have Cochlear Hydrops. A cousin to Meineres Disease.
I have ringing in my ear. My hearing comes and goes in waves. And every now and again it feels like liquid is leaking out of my ear. I have many other symptoms. But those are the major one.
Having TMJ in that side of my jaw also effects the Cochlear Hydrops.
There is no cure. I take 2 different medications to try to help the symptoms. I try to protect my hearing. Certain things can actually make my hearing worse. So I try to stay away from them.
I have good days and bad days. But I’ve learned to live with it.
It’s become frustrating at times though. I often miss things that are said and I have to ask people to repeat themselves. They seem put off. And when I mention I’m going deaf, that I actually didn’t hear them. It changes in an instant. Suddenly their displeasure of having to repeat themselves is gone.
If someone asks for you to repeat yourself. Don’t be put off. They might not have heard you. They could be going deaf like me. Or something else. It doesn’t matter.
I love when people talk louder. How about speaking clearer. That is a main issue I have. If you mumble 🤷♀️ Speak clearer.
I had to retrain myself. I don’t put the phone on my left ear. I’ll miss some of what you are saying if I do.
I get a hearing test often. Some times I’m below normal, mildly, or moderately. Due to what I have my hearing changes.
But we have to document it. Because if my hearing gets bad enough I need a hearing aid I need the notes.
So far I’m good. But on the days I can’t hear it would be nice.
Just an update on my life.